Today I'm. Dismantling my medicine case and pink messenger bag. It's back to a normal purse for me! I don't need 5 medicines at a moments notice anymore!
Friday, March 23, 2012
|Mom sitting with me at chemo|
It was a little bittersweet. I'm so glad to be finished, and I'm ready to get on with my life. It was sad though. Over the past 6 months I've gotten to know my nurses and it's sad having good people leave your life.
It's also scary. For 6 months my main goal has been getting better. The nurses gave me my schedule for the month, and a lot of my decisions were made my doctors. Especially things like what over the counter medicines can I take? What can I eat? A lot of my life has been ruled by cancer. Now I'm facing down making my own choices again, going back to work, and generally living life.
It's exciting, but it's scary! I was up and down emotional for a week (a lot of you may know I don't deal with major change all that well, which might also be a factor).
I still have next week for my food restrictions. My doctor told me I can go back to regular food sooner, but the instructions on the medicine said two weeks, and I'd rather play it safe.
It seems I've avoided a blood transfusion this cycle, which is great. My red blood cells were a little low, but not low enough to be a problem. My white blood cells, however, are another story. They were extremely low, so much so that my neutrafils (white blood cells that fight bacteria) didn't even show up on the chart. So I've been in "quarrantine" this weekend. Luckily my neulasta shot will probably kick in tomorrow night and I can go back to normal.
I don't know exactly where we go from here. I do know that just because chemo is over, it doesn't mean that my treatment is over. I will still have to see my oncologist and get a lot of scans and stuff. On Monday I see him to get my blood checked, and find out what the next steps are.
I know I have to get a bone density test. One of the side effects of the chemo has caused some probable bone issues, so I have to see if I need treatment for that. I also need to get a third PET Scan in about 4 weeks. If all is well then I can get my port removed, which I can't wait for!
Also, my hair has started to grow back! I've got little fuzzies all over my head which is super exciting. I can't wait 'till I can get my first haircut :)
So the chemo's over, but I'll still be posting updates as they come. Thanks for all the love and support and prayers, you guys really helped me get through this!
Tuesday, March 13, 2012
Last week was rough. Two weeks ago my red blood count was low. I didn't feel super sick, but I was exhausted. Constantly. I was on the border of needing a transfusion and not, but we decided to hold out and see what happened, since I was borderline and felt ok.
Last Monday was the same deal, and I was going to have my blood tested again on Thursday. I spent Tuesday pretty much asleep, and slept for 12 hours that night.
Wednesday I woke up, got up and was extremely dizzy, I knew I needed more blood. Josh called the doctor to see if I could get my blood tested that day and we set that up. One of the lead nurses called me and said since I had my blood taken on Monday they could just set me up for a transfusion and bypass more testing. I said great. She then told me that the hospital didn't have anything available till Friday. If i didn't feel like I could wait I could go to the emergency room.
I decided I couldn't wait, and I'd go to the emergency room. It turned into a one night stay, and the whole thing was sort of a debacle that I don't really want to talk about. The biggest highlights being the fact that it took 5 tries to access my port, and they decided to give me an IV anyway, and the prisoner wearing NOTHING but a hospital gown who kept passing my second room to get to the bathroom.
I felt so much better after getting more blood. Let's hope that was the final time.
Onto better news...
Yesterday I started my FINAL round of chemo!!! I am just tickled about this. It's really exciting and I cant believe it's finally here! Mom has been taking pictures of me with all my caregivers, which has felt like the end of Summer camp, when you get pictures of all your friends. I may post them up here for you guys.
I'm really happy that the weather is so beautiful for my final chemo rounds, and that spring is starting right when ai'm starting my new life as a healthy person.
Saturday, February 25, 2012
I've been having such a hard time motivating myself to do ANYTHING though. It kind of stinks. I guess everything's finally catching up to me. At least I'm getting a lot of reading done.
Thursday, February 16, 2012
Everything else has been going pretty steady, and I don't have a lot to report on. I have had to try really hard to stay hydrated, so I'm pretty much always drinking.
Coming off the steroids this week was really hard. It always makes me tired, but I just feel like this week I was especially tired. Yesterday I took 2 naps (I'm not much of a napper).
Also, Josh got me a Kobo (e-reader) for Valentine's day which was an awesome surprise! The first e-book I bought was Watership Down, and I'm already 10% finished. I'm LOVING the Kobo!
Monday I'm starting my 7th chemo cycle. Two more to go!!!
Thursday, January 26, 2012
All the chemo is finally caught up to me though. I keep running around wondering why I'm so tired and my mom and Josh keep reminding me that I'm on chemo, and it builds on itself. Before, when I would feel normal it would last for a whole day or more, but the time I'm feeling normal is less and less. I'm spending more and more time resting (of course, a lot of that is doctor's orders). I haven't been to work since before my first hospital trip.
I suppose it was a matter of time. I tend to push through things, but this isn't really something you can push through. On the bright side, I've been finishing small projects. On top of that, I've beat 2 video games and read 2 books (working on my third of each). I can't even tell you how many movie's I've watched (so glad to have Netflix).
It's nice to have time, but it was hard to accept it. Sometimes I feel like everyone's out living life while I'm stuck in the apartment filling the time. I'll just have to live it up double time when I'm finished with treatment.
Friday, January 20, 2012
At this point in my cycle, along with low blood counts, I end up in a lot of pain. The shot they give me to boost my white blood cell count causes pain in my chest and lower back, but doesn't always happen. One of the other chemo drugs I have, called Vincristine, gives me a lot of bad symptoms (which sucks because it's such a teeny tiny amount of chemo. It doesn't even come in an IV bag, they use a little syringe to give it to me). I get earaches, mouth sores, and terrible leg pain. The pain in my thighs is the worst. The first cycle I could manage it with Tylenol, but every other cycle I've had to use a stronger pain medication to manage it. It only lasts a couple days, which isn't so bad.
Hospital time comes around when pain time comes around, and here's why I'm really glad I'm at home. When you're in the hospital they don't want you to take your own medicine, so they can be positive of what you've been taking, and how much of it so they don't accidentally kill you or something. (Makse sense). So when pain would show up I'd have to call a nurse to give me my medicine. Since I was in a hospital, and not the only patient there i would have to wait a while to get my medicine sometimes. It was such a relief last night when I woke up in pain and could just get up and get my own darn Tylenol.